So remember when I wrote my Penn Update and I mentioned that I needed to see a stroke doctor?
I called the day I wrote that update in order to get an appointment with the stroke doctor, Dr. Messe [the stroke doctor]. And can I just ask right now why it’s so damn difficult to get paperwork and a decent appointment with these doctors? Hello, progressive disease here. I need to get in to see you before, I don’t know, I have a stroke?
Dr. Messe’s assistant/secretary was supposed to call me when he got back from vacation on August 15. She has not, and frankly, I’ve been a little stressed about the Stuff that’s going on with us and I’ve not been thinking of myself. I know. One of these days, I’ll think about myself again. I promise. But . . . not right now.
I meant to call yesterday to talk to Dr. Messe’s office, but I got a little busy with work and it slipped my mind. I’m definitely going to call today. Definitely. As long as someone reminds me to do it. If I have to call Dr. Zager’s office to have him call or e-mail Dr. Messe again, I’ll do it. I just know that November 8 is most definitely not within the 4-6 week timeline that Dr. Zager initially said he wanted to get this done in.
I complained about being tired, and that still rings totally true. Yesterday, I woke up with a headache so bad that when I sneezed I jokingly feared brain matter was going to leak out through my nose. I don’t know if it was related to the Moyamoya or just allergies kicking my butt again, but headaches like that drive me crazy. I just want to feel better. I don’t want to have to make a contingency plan for what I need to do if I suddenly get a headache like that and I’m alone with my kids.
I should probably research this surgery a little more.