In 2006, I passed out while driving. It resulted in an MRI and a whole lotta “we don’t know what’s wrong with you, let’s hope it was a fluke.”
In August 2010, I suffered an epic migraine. My neurologist did a few tests, but couldn’t do an MRI because of my pregnancy. Amazing how I could have maybe gotten answers way back then if only the contrast wasn’t needed. Anyway.
In January, I had a follow up appointment. The doctor ordered an MRI with contrast. It was mostly clear, but he wanted to run an MRA. This time, contrast was not needed. That test was on Thursday. My doctor called me on Friday with a “potential” result.
Ever heard of Moyamoya disease? It’s okay, I hadn’t either. Apparently it’s rare. Like, 1 in 2,000,000 cases in the USA rare. The neurologist isn’t exactly sure that’s what’s wrong with me . . . yet. But he moved my next follow up from May 24 to March 22 and asked me to starting taking low dose aspirin every day to prevent blood clots.
So, how do I feel about this? I’m overwhelmed. And I almost feel like I shouldn’t even be posting about this yet, because I don’t know for sure that this is what’s wrong.
I just needed to vent about it, and I didn’t know where else to turn.